Wednesday, 25 February 2015

#PPROM Awareness Saves Lives......#Help Keep EVERY Little Heartbeat Strong

40 percent of premature births are associated with a condition known as PPROM.

Some babies make it, sadly one too many don't.

Follow our thunderclap so we can raise as much as possible to invest in awareness and life saving research

Click this link to follow our thunderclap and #RT

PPROM is the acronym for Preterm Premature Rupture Of the Membranes, which is also known as waters breaking early in pregnancy.

We are parents who are striving to raise awareness and we feel 40% is unacceptable. With proper awareness, education and more research this number could be much lower. We hope to become a registered charity this year so that we have the ability to make a difference and support those affected.

We don't want to see other families faced with PPROM to feel alone.

All funds raised will go to All funds raised will go to Little Heartbeats & UCLH Charity no 229771 in support of in support of PPROM awareness in pregnancy and UCLH Stem membrane patch project

#PPROM Awareness Saves Lives......#Help Keep EVERY Little Heartbeat Strong

Created by Little Heartbeats

Little Heartbeats needs to raise £5k to become a charity and wants to raise £25k towards a Stem Membrane Patch Research project via UCLH Charity, which can reseal the membranes in certain cases.

That would give so many babies the best chance of being born healthy and at term.

We have specially designed these t-shirts to help us raise the funds needed to meet these goals.

There are currently two t-shirts designs,

one 'Proud Parent of a Preemie'.

and

one 'I'm Have An Angel Baby Forever In My Heart'

Both carry our PPROM awareness web address.

Why we do what we do?

After losing our first born baby Sinead, we made a promise to our little girl to make a difference about the condition that took her from us.

We lost her to PPROM.

It can happen to anyone at anytime during pregnancy and we want to raise awareness and to get the proper treatment recognised and implemented everywhere, all babies deserve the best possible chance to survive.

Support our campaign #Pprom @PpromAwarenessU

Please Help us raise awareness and funds today to help the babies and the parents of tomorrow

We are also doing a petition, to help implement change, please click to sign

Click to sign our petition

Thank you for your support.

For more information on #Pprom visit our webpage:

www.little-heartbeats.org.uk

Thursday, 19 February 2015

Help us gain changes for when your waters break in pregnancy

“Awareness on early rupture of membranes/waters in pregnancy?

Would u know what to do if it happened to your family?

Please take a minute to read it, watch our video links, and read and if possible sign our petitions to bring about a change in practice so that all hospitals learn the guidelines for treatment of early rupture of membranes in pregnancy and put them into practice.

It can happen to anyone at anytime during pregnancy we need to get the proper treatment recognised and implemented everywhere, all babies deserve every possible chance to be born. PPROM is the acronym for preterm premature rupture of the membranes. Help us raise awareness by signing the petition ( share if you can) just click & follow the link below so we can go viral

UK petition - 151 people have signed

Click to sign UK petition via http://epetitions.direct.gov.uk/petitions/74155

WE NEED YOUR HELP BY SIGNING & SHARING

SO DON'T FORGET TO SIGN

We are also running the change petitions, as you have a chance to say why you are signing and why it is important to you help us get to our goals by signing all 3.

Worldwide petition click here to sign petition via www.change.org/p/jeremy-hunt-treat-pprom-as-it-states-as-emergency-saving-babies-lives
1361 signed / 100th

Our friends in USA worldwide can sign
click on this link to sign via www.change.org/p/support-pprom-labor-intervention-lower-gestational-viability
533 signed / 100th

We now raise awareness on this condition in pregnancy

♥ ♥ ♥

www.little-heartbeats.org.uk

♥ ♥ ♥

PLEASE COMMENT WHY YOU HAVE SIGNED OUR PETITIONS ON THE COMMENT BOXES

We know as PPROM parents that some

◊ Some Babies Make it ◊

♥ Sadly Some Don't ♥

which is WHY we are Campaigning

♥ ♥ ♥ Also Every donation is appreciated ♥ ♥ ♥

Click here to donate uk.virginmoneygiving.com/team/PPROMBABY

or support or advertise on our webpage so we can keep up the good work of supporting mums & their families

dealing with this condition

pay via paypal to little.heartbeats@mail.com

Find us on social media

Please follow us on:

Face book page is: www.facebook.com/PpromAwarenessUK

Twitter account is: @PpromAwarenessU

Our Pprom Campaign Page www.facebook.com/pages/Pprom-Preterm-premature-rupture-of-the-membranes-campaign-for-changes/883192785034169

Instagram: little.heartbeats.ppromaware

Dealing with Pprom read our webpage for official UK guidelines

www.little-heartbeats.org.uk

our videos & Pprom blogs

Our Videos

Little Heartbeats Making PPROM Awareness in Pregnancy

https://www.youtube.com/watch?v=s39x88z8MX4

My Story by Little Heartbeats Take 1

https://www.youtube.com/watch?v=7U_LYRv3Lzc

My Story by Little Heartbeats Take 1

https://www.youtube.com/watch?v=xTvXLiLruso

Our Friends in USA - The American Alliance for pProm Support Webpage

www.aapprom.org

Two of Our miracle babies stories

One of Our Brave PPROM mums, my story by Mum Georgia Taryn

http://youtu.be/PiswODBNDps

Thursday, 12 February 2015

Guess My Gestation

My name is Sinead

My mummy fundraisers & raises awareness after losing me

Mummy wants you to guess my gestation ?

Mummy has never shared me public since the day she lost me

http://youtu.be/pB58pbFJNM8

Mummy is sharing today, as she wants something positive to happen

On some occasions when mummy was missing me,

she would write on my photo on facebook, as she can no longer hold me in her arms

Some people did not like it and deleted mummy

Mummy just wants to raise awareness and educates others

and help raise funds so no one follows in our footsteps

so we can help Save Babies lives

and support parents regardless of outcomes.

Mummy Set up a webpage to help others

Mummy wants to set up a charity

and

invest in PPROM research projects

Mummy has raised lots for

UCLH - but mummy's team is short of 25k and this year mummy has failed to gain enough donations

Tommy's - PPROM project unless mummy raises enough, we will not fulfil our dreams

mummy has also raised funds for other causes too

Mummy sells wristbands just like in the video too, this year sadly mummy has only sold 4.

Mummy's wish is to have something good out of her heartache

'At the moment'

"Mummy Feels Like She Has Failed"

One of Mummy's Fundraising Pages

To donate click on here via virginmoneygiving.com/team/PPROMBABY

Mummy knows not many will :(

Petition for change

Worldwide can sign and comment

click here to sign the petition via www.change.org/p/jeremy-hunt-treat-pprom-as-it-states-as-emergency-saving-babies-lives

Only UK can sign

Mummy only has till 30th March 2015

Sign UK petition click here - http://epetitions.direct.gov.uk/petitions/74155

Note you must confirm your UK signature via email

Mummy has given up hoping and now prays that some how she can gain public support

To help mummy set up the charity

we need to raised £5k currently we do not have a bank account, and only have paypal

we have to start some where

to donate: click here to pay pal
to email address - little.heartbeats@mail.com

#Pprom #fundraising #awareness #failing #preemie #premature-births #miracle

Tuesday, 3 February 2015

Awareness on Your Waters breaking in Pregnancy Petition to make changes for the better

How many mums waters broke before 24 weeks of pregnancy?

How many mums waters broke before 37 weeks of pregnancy?

Did you know what to do ?

Were you told the correct medical wording of your condition?

We are asking the question above as we were not told that the medical wording was PPROM

We did not receive the knowledge on what to do and what to expect

When you know you are at risk of going into premature labour

It is a Scary Experience

Knowledge is Key

Therefore

We are campaigning for change

We have less than 2 months to gain 100th signatures

What are e-petitions?

e-petitions are an easy, personal way for you to influence government and Parliament in the UK. You can create an e-petition about anything that the government is responsible for and if it gets at least 100,000 signatures, it will be considered for debate in the House of Commons. You can find more information about how the House of Commons deals with e-petitions on the Backbench Business Committee website This link opens in a new window.

sign our petition http://epetitions.direct.gov.uk/petitions/74155