Friday 18 December 2015

Support PPROM awareness today


Support our cause today by donating £1 

every pound adds up


See our weboage here, 

http://www.little-heartbeats.org.uk/


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Sunday 27 September 2015

TShirts, wristbands, keyrings to raise funds for PPROM awareness and research....

USA, worldwide can Buy via https://teechip.com/angel
UK, can Buy via 
USA, worldwide can Buy via https://teechip.com/proudparentpreemie
UK, can Buy via 

Buy via https://www.tboom.co.uk/keep-on-running
 
UK Buy via https://www.tboom.co.uk/keep-on-running---blue-top







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Thursday 24 September 2015

Little Heartbeats PPROM awareness


You don't need to be alone any longer 

If you are dealing with PPROM
On bedrest, dealing with neonatal, dealing with PPROM baby loss 
then do get in touch with us by sending us a private message on our Facebook page here https://www.facebook.com/PpromAwarenessUK
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Monday 21 September 2015

#PPROM Remembering Daisy Masie (Created with @Magisto)

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Saturday 12 September 2015

Thunderclaps to raise awareness



It takes one second to do, and mean an awful lot to us Pprom parents if you can support and follow our Thunderclap

 Link is here 

 https://www.thunderclap.it/projects/30730-pprom-awareness-in-pregnancy

 take the time to watch our videos....

 why this is important to us...
Watch our PPROM video here 

Guess what babies do survive, if the RIGHT Care is given 
watch here 


Our thunderclap is here --->>>>>


 Thank you for supporting our cause 




Raising awareness of a life changing pregnancy condition can you help us raise awareness tonight ? 

 We are nearly at 2000 views on our top video can you make it happen? 

 also we are now short of 25 people for our social media thunderclap to work 

 can you follow this tonight? 

 our thunderclap page to follow 

 https://www.thunderclap.it/projects/30730-pprom-awareness-in-pregnancy

 our donation page

 https://www.youcaring.com/nonprofits/little-heartbeats-raising-awareness-on-pprom-/337480

 we are local to the area, and hoping to have a xmas show on soon too, just this week getting over surgery as just had a other baby loss, even though this time it was a missed miscarriage, the heartache is pretty hard to take in 

 my blog

 http://miscarriage-nomoreheartbeat.blogspot.co.uk/2015/09/the-feeling-of-emptiness.html

 to date by raising awareness we have saved babies lives, we hope more can be saved by others helping to spread awareness and following our page

 https://www.facebook.com/PpromAwarenessUK

 https://twitter.com/PpromAwarenessU

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Raising funds to make a difference

We have shared this so many times, and we really feel very passionate about it, but no matter what we do, we just not getting funds in, running out of ideas, and wondering how do we change this, so we are gaining the support? 
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Friday 8 May 2015

PPROM Thunderclap - what is thunderclap? #PPROM #Prematureruptureofmembranes before 37 weeks - #Pregnancy #MatExp

What is Thunderclap?
Thunderclap is the first crowd-speaking platform that helps people be heard by saying something together.
How does it work?
If you reach your supporter goal, Thunderclap will blast out a timed Twitter, Facebook, or Tumblr post from all your supporters, creating a wave of attention.
Who's using it?
From passionate individuals with a message to share, to organizations such as The White House, Levis and the United Nations.
So hope that helps you decide to follow our #thunderclap 

“We are NOT the Only 1's & Our babies deserve the best possible chance to survive https://youtu.be/5x0O_kyX1cc #PPROMAWARE http://thndr.it/1brQ37W”

Click to follow here ---- https://www.thunderclap.it/projects/25960-sharing-is-caring-donate-1
SUPPORTERS
18 of 250
7% of goal supported
SOCIAL REACH
80,187
People
TIME LEFT
23 days
Ends May 31, 8:00 PM EDT

'Unless someone like you cares a whole 

awful lot,Nothing is going to get better. It's not.' 

Saying BY Dr. Seuss — 






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Tuesday 5 May 2015

Perfect Heartbeats Preterm Premature Rupture of Membranes In Memory of our Babies born sleeping

PPROM Awareness Video by Our Angel Mums

463 views
http://inspiredyouth.morezest.com/powerful-pprom-awareness-film/

'Unless someone like you cares a whole 

awful lot,Nothing is going to get better. It's not.' 

Saying BY Dr. Seuss — 


To help us gain changes to the way PPROM is dealt with please Sign our petition: click to here to sign our Change PPROM petition

For anyone wanting to Donate, 

click here:-  

http://www.youcaring.com/nonprofits/little-heartbeats-raising-awareness-on-pprom-/337480

or to #UCLH Stem Membrane Patch Project via 

Just giving text PROM49 £1 to 70070 

or to any of our team giving pages, 

https://www.justgiving.com/teams/Ppromresearch

'Sinead Speakman 15.04.2010'

Broke mummy's heart and why she is driven to do her uppermost to raise awareness & funds 

Our photos is all we have of our precious first born baby Sinead, many find it too hard too look at, and many have made us feel that we should not be sharing, even lost friends through writing on the very first photo that we shared of her, 

 The very first time we shared her was the day we gave birth to her and the day she lost her fight for life....

 Which was the only ever time we shared her publicly.....

 We were made to feel this was wrong..... 

but these are our memories, and we have taken the hard decision to share, as we took them to let the world know we gave birth to a baby....

Perfect nose, perfect hands, perfect feet 

Fully formed and was every inch of us....

After we had a scan to confirm we had PPROM, with only sacs full of waters, we were refused to listen into her heartbeat again.....

We have never forgotten our daughters heartbeat.....
14 views
and we are not ashamed of our daughter because of our daughter we now raise awareness and we know it has saved at least 1 babies life, we want to save lots more.....

which is why this Stem membrane patch project means the world to us, and the reason why we now want to set up Little Heartbeats as a charity.
We are praying that wishes come true, and we gain your support today, so we can help other mums through their journey both miracle babies and babies born too soon

Sinead Video 1 - Our sleeping princess too beautiful for earth...



Sinead Video 2


http://flipagram.com/f/QmHdmBEF92

Our latest Thunderclap click here to follow by twitter or facebook

SUPPORTERS
18 of 250
7% of goal supported
SOCIAL REACH
80,187
People
TIME LEFT
23 days
Ends May 31, 8:00 PM EDT


#PPROM #Prematureruptureofmembranes #watersbreaking #pregnancyissues #miracles #babyloss #breakthetaboo @PpromAwarenessU https://www.facebook.com/PpromAwarenessUK
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Friday 1 May 2015

Little Heartbeats PPROM awareness video


460 views 

PPROM (Preterm Premature Rupture of Membranes) happens in about 2% of all pregnancies. In this Little Heartbeats film Ciara and Rachel tell the story of how they lost their babies to PPROM and how they are campaigning to raise awareness so other mums don't have to experience the same tragedy.

PROM occurs in 6-19% of term pregnancies.[1]
PPROM occurs in 2% of all pregnancies.[2]
PPROM is associated with 40% of preterm deliveries and can lead to significant morbidity and mortality.

It is a HUGELY important message and we would love if you could share our film. To join the campaign visit http://www.little-heartbeats.org.uk 

Fundraising to make a difference 
Thank you to those who would like to support our campaign with a donation http://www.youcaring.com/nonprofits/little-heartbeats-raising-awareness-on-pprom-/337480

Fundraising for our Stem membrane patch project via UCLH Charity 

 donate by clicking on this link here: https://www.justgiving.com/teams/Ppromresearch
or text £1 PROM49 to 70070 via just giving

Follow us on twitter @PpromAwarenessU

Support us on Facebook https://www.facebook.com/PpromAwarenessUK

Sign our petition https://www.change.org/p/jeremy-hunt-treat-pprom-as-it-states-as-emergency-saving-babies-lives

THANK YOU for your support.

Dedicated to all the precious little heart-beats that passed away.

An Inspired Youth Production for Little Heartbeats PPROM campaign

@inspiredyouth

 22 weekers survivals 

 http://www.nytimes.com/2015/05/07/health/premature-babies-22-weeks-viability-study.html?_r=0
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Tuesday 14 April 2015

Stem Cell Membrane Patch Can SAVE Thousands of pregnancies





On Saturday 15th April 2010 Phil and I tragically lost our first born baby, Sinead.  

My pregnancy was going perfectly, until the day I lost my waters, so I thought....

  • One of the hardest aspects of losing Sinead is that there is no medical intervention although on the very day our daughter lay dead, one consultant took the please to tell us there was a emergency stitch, and asked me why this was not inserted, 
  • Little too late to be telling us this WHEN our baby laid in a cupboard dead. 
  • Lack of education and lack of choices as like ourselves offered a termination, although I am a catholic, many mistakes were made, one being given a tablet which causes losses, we will always have that BUT if 
  • We know had they listen to us, that we could of been to still have my first born with us, management plans can help to carry to 34 weeks, and also errors made prior to my complications which could of avoided us dealing with this condition. 
  • The memories are as livid as they were 5 years ago, I have constant flash backs, and find it extremely difficult to express myself these days. 
  • As a result we are passionate about funding research into why PPROM exists, and how to educate others, through raising awareness and being in a number of network groups, felt extremely passionate about doing something about this. 


Only way we can achieve this project is for you to donate https://www.justgiving.com/resealppromUK/

 Or donate here 



Donate http://www.youcaring.com/nonprofits/little-heartbeats-raising-awareness-on-pprom-/337480




We contacted the consultant running the research called 
Dr Anna David, and we have to say, is one of the most passionate caring consultants we have met through our journey, and we asked her how much remaining was left to fund this, and too run this research they need 25k. 


I'm PPROM Aware Wristbands - £1.50 plus 37p paypal costs and postage UK post: £1 overseas £3.25, pay via pay pal little.heartbeats@mail.com 

We also have more research projects plan, but we not like to reach our first target

While raising all this awareness we felt it was so important to gaining the right information to parents, we were told our loss was due to group b strep, as I happen to be ill with group b strep, BUT group b strep was not the cause for us losing the baby, 

The main cause was due to PPROM, my waters went too soon, and when we reported this, the midwife did not believe us and sent us home, a week later our first born baby had died during child birth. I gave birth to my daughter crying throughout the process, I cried that much, the pain I endured was not notice, I am very vague on my experience as we have a ongoing complaint, all we wish for is a independent review so PPROM can be dealt with as a emergency 

So we invested in a webpage so we can let other parents know what premature rupture of membranes is, we are now hoping to set up as a charity which is run when we are not working, 

www.little-heartbeats.org.uk We need to raise 5k to have this up and running - to support us for this pay via paypal at little.heartbeats@mail.com

Recently one of our mums lost her baby at 34 plus weeks and now has informed she may not bear a child, which is why we are keen to getting our voices heard, our WORLDWIDE petition, which allows you to have your voice heard. 

https://www.change.org/p/jeremy-hunt-treat-pprom-as-it-states-as-emergency-saving-babies-lives


We are also selling I'm PPROM aware t-shirts via a company called tboom 
Completing in the London Marathon 2015 if no injury occurs, and doing a skydive while dealing with PTSD and stress mental health condition, which up to date, have felt a shamed to admit as I know people can be so judgemental. 

We have already completed the in Manchester 10k, Great North Run, London Marathon 2013

*** Watch our video 

http://youtu.be/s39x88z8MX4


UCLH Giving Text telephone number: 70070 
with the words:PROM49 
with your amount,£1  

We want to raise for our first project 30k 

To donate to Little Heartbeats donate to little.heartbeats@mail.com via paypal 

  • In memory for all our babies that did not make it 

  • For all our pprom mums to be on bed rest 

  • For all our miracle babies fighting in neonatal 


Please donate as much or as little as you can, any contribution is hugely appreciated. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.


UCLH Research
As you see on our Daily Mail link above, 

UCLH have a amazing research project which plans to develop a way to heal the amniotic membranes after they rupture.

We want you to support us, for all babies born premature, and for all babies born too soon due to PPROM which stands for Preterm Prelabour (premature) Rupture of Membranes.
- We need over £30k to get them to the full amount needed for this amazing project. If you can be part of the team to get us here please join our team, each penny will be added to this.
- Six out of 100 babies in the UK are born prematurely, before the 37 week of pregnancy. Babies may be born early because a women goes into labour spontaneously. But sometimes babies need to be born early because they are having problems in the womb, such as poor growth for example. Improvements in the care of newborns mean that most premature babies survive and grow up normally despite being born so early. However some babies have long term health problems as a result of being born premature.
- Our understanding of premature birth is limited and that is why more research is vital. We research why some women go into labour early by studying the role of infection, the response to infection and the natural antibiotics in the vagina. We are developing therapies that could reduce a woman’s risk of going into premature labour. We are testing out new treatments to help babies grow in the womb. 
  • Your donation will help to support our current research programme, which is:

  • - Stem membrane patch project 
  • - Developing tests to improve prediction of premature births (£50 per sample)
  • - Analysing the levels of bacteria in urine (£75 per sample)
  • - Examining immune blood cells in women who have their baby premature  (£150 per sample)
  • - Developing new drug and stem cell treatments that could heal the amniotic membrane when it ruptures early (£200 per sample)
  • - Testing the response of the amniotic membrane to repetitive stretching to find out why they rupture early in some women (£500 per sample)
  • - Testing new drugs to help small babies grow better in the womb (£1000 per experiment)
Each of these studies involves carrying out tests on 50 to 100 women.

Thanks for taking the time to visit our JustGiving page.

#pprom #prematureruptureofmembranes #babyloss #savelives 

Thank you for taking the time to visit my JustGiving page

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