Raising awareness of a life changing pregnancy condition can you help us raise awareness tonight ? We are nearly at 2000 views on our top video can you make it happen? also we are now short of 25 people for our social media thunderclap to work can you follow this tonight? our thunderclap page to follow https://www.thunderclap.it/projects/30730-pprom-awareness-in-pregnancy our donation page https://www.youcaring.com/nonprofits/little-heartbeats-raising-awareness-on-pprom-/337480 we are local to the area, and hoping to have a xmas show on soon too, just this week getting over surgery as just had a other baby loss, even though this time it was a missed miscarriage, the heartache is pretty hard to take in my blog http://miscarriage-nomoreheartbeat.blogspot.co.uk/2015/09/the-feeling-of-emptiness.html to date by raising awareness we have saved babies lives, we hope more can be saved by others helping to spread awareness and following our page https://www.facebook.com/PpromAwarenessUK https://twitter.com/PpromAwarenessU
We have shared this so many times, and we really feel very passionate about it, but no matter what we do, we just not getting funds in, running out of ideas, and wondering how do we change this, so we are gaining the support?
Broke mummy's heart and why she is driven to do her uppermost to raise awareness & funds
Our photos is all we have of our precious first born baby Sinead, many find it too hard too look at, and many have made us feel that we should not be sharing, even lost friends through writing on the very first photo that we shared of her, The very first time we shared her was the day we gave birth to her and the day she lost her fight for life.... Which was the only ever time we shared her publicly..... We were made to feel this was wrong.....
but these are our memories, and we have taken the hard decision to share, as we took them to let the world know we gave birth to a baby....
Perfect nose, perfect hands, perfect feet
Fully formed and was every inch of us....
After we had a scan to confirm we had PPROM, with only sacs full of waters, we were refused to listen into her heartbeat again.....
We have never forgotten our daughters heartbeat.....
and we are not ashamed of our daughter because of our daughter we now raise awareness and we know it has saved at least 1 babies life, we want to save lots more.....
which is why this Stem membrane patch project means the world to us, and the reason why we now want to set up Little Heartbeats as a charity.
We are praying that wishes come true, and we gain your support today, so we can help other mums through their journey both miracle babies and babies born too soon
Sinead Video 1 - Our sleeping princess too beautiful for earth...
PPROM (Preterm Premature Rupture of Membranes) happens in about 2% of all pregnancies. In this Little Heartbeats film Ciara and Rachel tell the story of how they lost their babies to PPROM and how they are campaigning to raise awareness so other mums don't have to experience the same tragedy.
PROM occurs in 6-19% of term pregnancies. PPROM occurs in 2% of all pregnancies. PPROM is associated with 40% of preterm deliveries and can lead to significant morbidity and mortality.
On Saturday 15th April 2010 Phil and I tragically lost our first born baby, Sinead.
My pregnancy was going perfectly, until the day I lost my waters, so I thought....
One of the hardest aspects of losing Sinead is that there is no medical intervention although on the very day our daughter lay dead, one consultant took the please to tell us there was a emergency stitch, and asked me why this was not inserted,
Little too late to be telling us this WHEN our baby laid in a cupboard dead.
Lack of education and lack of choices as like ourselves offered a termination, although I am a catholic, many mistakes were made, one being given a tablet which causes losses, we will always have that BUT if
We know had they listen to us, that we could of been to still have my first born with us, management plans can help to carry to 34 weeks, and also errors made prior to my complications which could of avoided us dealing with this condition.
The memories are as livid as they were 5 years ago, I have constant flash backs, and find it extremely difficult to express myself these days.
As a result we are passionate about funding research into why PPROM exists, and how to educate others, through raising awareness and being in a number of network groups, felt extremely passionate about doing something about this.
We contacted the consultant running the research called
Dr Anna David, and we have to say, is one of the most passionate caring consultants we have met through our journey, and we asked her how much remaining was left to fund this, and too run this research they need 25k.
I'm PPROM Aware Wristbands - £1.50 plus 37p paypal costs and postage UK post: £1 overseas £3.25, pay via pay pal firstname.lastname@example.org
We also have more research projects plan, but we not like to reach our first target
While raising all this awareness we felt it was so important to gaining the right information to parents, we were told our loss was due to group b strep, as I happen to be ill with group b strep, BUT group b strep was not the cause for us losing the baby,
The main cause was due to PPROM, my waters went too soon, and when we reported this, the midwife did not believe us and sent us home, a week later our first born baby had died during child birth. I gave birth to my daughter crying throughout the process, I cried that much, the pain I endured was not notice, I am very vague on my experience as we have a ongoing complaint, all we wish for is a independent review so PPROM can be dealt with as a emergency
So we invested in a webpage so we can let other parents know what premature rupture of membranes is, we are now hoping to set up as a charity which is run when we are not working,
www.little-heartbeats.org.uk We need to raise 5k to have this up and running - to support us for this pay via paypal at email@example.com
Recently one of our mums lost her baby at 34 plus weeks and now has informed she may not bear a child, which is why we are keen to getting our voices heard, our WORLDWIDE petition, which allows you to have your voice heard.
Completing in the London Marathon 2015 if no injury occurs, and doing a skydive while dealing with PTSD and stress mental health condition, which up to date, have felt a shamed to admit as I know people can be so judgemental.
We have already completed the in Manchester 10k, Great North Run, London Marathon 2013
*** Watch our video
UCLH Giving Text telephone number: 70070
with the words:PROM49
with your amount,£1
We want to raise for our first project 30k
To donate to Little Heartbeats donate to firstname.lastname@example.org via paypal
In memory for all our babies that did not make it
For all our pprom mums to be on bed rest
For all our miracle babies fighting in neonatal
Please donate as much or as little as you can, any contribution is hugely appreciated.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
As you see on our Daily Mail link above,
UCLH have a amazing research project which plans to develop a way to heal the amniotic membranes after they rupture.
We want you to support us, for all babies born premature, and for all babies born too soon due to PPROM which stands for Preterm Prelabour (premature) Rupture of Membranes.
- We need over £30k to get them to the full amount needed for this amazing project. If you can be part of the team to get us here please join our team, each penny will be added to this.
- Six out of 100 babies in the UK are born prematurely, before the 37 week of pregnancy. Babies may be born early because a women goes into labour spontaneously. But sometimes babies need to be born early because they are having problems in the womb, such as poor growth for example. Improvements in the care of newborns mean that most premature babies survive and grow up normally despite being born so early. However some babies have long term health problems as a result of being born premature.
- Our understanding of premature birth is limited and that is why more research is vital. We research why some women go into labour early by studying the role of infection, the response to infection and the natural antibiotics in the vagina. We are developing therapies that could reduce a woman’s risk of going into premature labour. We are testing out new treatments to help babies grow in the womb.
Your donation will help to support our current research programme, which is:
- Stem membrane patch project
- Developing tests to improve prediction of premature births (£50 per sample)
- Analysing the levels of bacteria in urine (£75 per sample)
- Examining immune blood cells in women who have their baby premature (£150 per sample)
- Developing new drug and stem cell treatments that could heal the amniotic membrane when it ruptures early (£200 per sample)
- Testing the response of the amniotic membrane to repetitive stretching to find out why they rupture early in some women (£500 per sample)
- Testing new drugs to help small babies grow better in the womb (£1000 per experiment)
Each of these studies involves carrying out tests on 50 to 100 women.
Thanks for taking the time to visit our JustGiving page.